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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 31
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Cazza here again as you may now i have severe RA Married with a 3 yr old and 12 yr old my RA is not under control yet it was until last week.when i was having MS symtoms i was falling over etc when i went to see my Eyenercept/enbrel nurse she said come of the medicine asap as it can cause MS syymptoms so can all anti tnf so i was told.She has referred me to a neurologist just to be certain.Over the last few days my Rhas got worse hands hips knees ankles i had a fall outside yesterday and have also hurt my left hip and ribs.Today i have taken my normal medication but am in so much pain i have benn bed bound and have had alittle cry my family have gone to mother in laws to tea and i have to stay here alone its such as lonely life
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 119
Location: warrington
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aww Cazza
so sorry to see you having a really rough time.didn't like to think of you alone. Hope your family are back & looking after you.
you are not alone when you come on here. Keep posting when you can.
love sue v xxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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How I sympathise with you Cazza - I'm a lot more mobile but still get that 'left behind' feeling sometimes. I can't believe what you have been through recently. When do you see the neurologist?
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Caxxa, so sorry you are so bad at the moment. I hope your family are back now, its so hard when you can do things with them. I hope this can be sorted quickly for you, take care BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hello Cazza Sorry to hear that you are feeling so poorly and still having these nasty falls. You could do with a little bit of extra TLC as this difficult time. I hope your appointment with the neurologist comes through soon and you are able to get a satisfactory answer and some treatment for your problems. Things will get better for you, although I know it probably doesn't feel like it right now, and the RA will be brought under control with alternative medication. In the meantime, keep warm and rest, rest, rest! Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Cazza, I'm so sorry that this is all happening to you I really wish that there is someone that you see can do something to make you feel better. Just maybe you could be helped a bit when this weather gets better we are in March tomorrow and spring may be on it's way. Sometimes it does help lift us a bit. This cold and damp can make even healthy peoples bones feel sore. Try and keep warm, I know it,s hard to rest with a three year old but as much as you can and I hope something good happens for you soon. Take care. Glenys x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Cazza,
Sorry to hear about your fall.
Hope things start getting better for you soon, it's time you had a break!
Love and hugs,
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh so sorry to hear you're alone on a Sunday.
And that you had a fall...that's all you need.
Please know you remain in my prayers and I send you love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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So sorry to hear how rotten things are for you, Cazza - I hope you can see the neurologist soon, and they can come up with some answers for you. Take care, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Dear Cazza,
You have had such a rough time of it for a long time now and I am so sorry that it hasn't improved yet. Thinking of you in love and hope for some kind of resolution soonest.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Cazza,
How are you feeling today? Have the meds kicked in yet? Also, have you been given a date yet for the neurologist?
Hang in there x x x
Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Hope you're starting to feel better
Love
Maria x
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Dear Cazza
I'm sorry you're still in lots of pain, it's bound to make you feel very down. It must be very hard, being on your own for a while. Do you have a flask so that you can have a warm drink? I hope you've got lots of magazines to read, and a tv.
I hope your appt comes through soon.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Dear Cazza,
My heart goes out to you, this retched disease has a lot to answer for. I'm keeping my fingers crossed and hoping that the medics can come up with a treatment for you that doesn't cause a whole host of other illnesses. I know it's not the same as having family around you, but as long as the forum is here you'll never be left entirely alone to suffer with the disease.
I was wondering if it was possible for you to arrange a few small pleasurable treats for yourself, one for everyday to keep your spirits up? Perhaps choosing a funny film to watch with a girlfriend curled up on the sofa with a box of chocolates and a glass of wine when family are out, and when you are left on your own? Surfing the net for the perfect dream dress, and planning trips with the family for when you feel better and when the weather improves... Planning nice manageable things to do will help to keep your spirits up.
Not sure where you live, but you could try your local Good Neighbour Scheme as they often have befrienders who visit people who are housebound, and help also with minor chores.
Take care, and gentle cyber hugs,
love,
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 262
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Dear Cazza,
sorry that things are so awful for you at the moment. Hang in there and I hope things take a turn for the better for you soon.
thinking of you very much
love Diane x
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